We had the Kids with Heart Christmas Party today (my daughters are the two in the front, one in a red corduroy dress and the other in an orange corduroy dress. It is such a great time being able to hang out with other families of kids with heart defects. The woman who runs it has an adult son, but continues to participate and help us with the support group. She funds all of this with proceeds from the Kids With Heart website - the books sold, the bears, etc...
We each bring a dish to pass, Pepsi provides the beverages, and one of the local bakeries provided the buns and cookies. Each child got 3 gifts...that's right - ALL of the children. Granted, there were probably only 25 or so, but that is still a nice chunk of money being spent. They don't get anything too expensive, but it brings such a light to their eyes to get anything.
They also have all sorts of craft project set up - cookies to decorate, pine cones to decorate for ornaments, little mice to make out of felt, etc...the girls had a blast. At the end of the day we met a woman who is actually going to start having support group meeting once a month - this will be fantastic and I for one can't wait. Her little girl (who is 2) has an ASD but it hasn't been operated on - they are hopeful that it will close and no surgery will be necessary. She was telling us that her and her husband tried for 8 years to get pregnant (they had a 10 year old) and after they sold all of the baby stuff they found out they were. When the baby was 4 months old she got pneumonia and that is when they noticed she had a heart murmur and that she may need surgery at some point for her heart. Two weeks later, her husband collapsed at work. He was conscious, but had hit his head and it was mandatory that he be taken to the hospital to be checked. When she got to the hospital, she was waiting for the doctor with here daughter when they heard a Code Blue. 30 minutes later she was met by the clergy - her husbands aorta had burst and he was dead...at 40. So, not only was she worried about her 5 month old daughter with possible heart issues, she then lost her husband due to a ruptured aorta. Just when you think life is rough and you get down, you meet someone like this and it truly makes you realize how good you have it.
Well, off to take care of the rugrats - hope you all had a nice Sunday!
Kids with Heart Christmas Party
Posted by Tracee Sunday, December 7, 2008 at 3:49 PM
Labels: Cardiovascular Disorders, christmas, Conditions and Diseases, Health, Heart disease, Pepsi, Pneumonia, Support group
Another long day
We went out for the first time in 4 days. That after the girls were up at 6:00 this morning. It's been a very long day and it is starting to hit home. Sorry this is a short post, but I have to get the kids ready for bed (hopefully) and I wanted to get something written so I don't miss a post for Nablopomo. Have a great weekend!
Zithromax...how long does it take?
Well, I have bronchitis. That's ok I guess. The only problem is that I have taken the first two doses and this morning I woke up with a temperature of 103 and more chest pain than I had before. So, one more call in to the doctor. I normally wouldn't do that, but even though we are in a fairly populated area, the nearest walk-in is over 20 minutes away. Just need to know if this will kick in, or if because I am still running a fever something else is going on.
We still don't have all the stuff for the girls for St. Nick either. My hubby took the day off - he is feeling better, but better is a relative term. He has one more dose of Zithromax in his system and is still coughing up stuff. The kids - that's a different story. Ella (who has pneumonia) and Grace (who has bronchitis) are playing and goofing around as much as they always do. I actually beg them to calm down - my fear is that they will end up in the hospital, and we have a Kids With Heart party on Sunday with Santa. We don't want to miss it so we need to start feeling a whole lot better than we are now.
Hope you all have a good Friday!
Posted by Tracee Friday, December 5, 2008 at 6:36 AM
Labels: Bronchitis, Chest pain, Conditions and Diseases, Cough, Health, Hospital, Pneumonia, Respiratory Disorders
Happy 74th Birthday Nana!
Today my Nana turns 74. I have put a picture of her and my Papa holding Grace when she was born and a picture of her holding Ella when she was born. I wasn't able to find my more current pictures, but that's ok because this is the way I like to remember her.
Her health has deteriorated quite a bit over the last 4 years. She has had two angioplasties, a hip replacement, and now suffers with end stage COPD and gall bladder problems. She actually should have her gall bladder removed but her lungs would not survive the surgery so she instead needs to try and control her attacks through diet. There is no hope of excercise for her, as both of her knees need to be replaced. They are actually bone on bone at this point, but again there is no chance for surgery. She also has been on steroids for too long, so now they have to try and wean her off. This will cause her more pain, and could make it even more difficult for her to breathe. Add this to the fact that her oxygen is no longer covered by Medicare so she has to worry about how to pay for it. You can just imagine what kind of life she has.
But, that said, this is one of the strongest women I know. She insisted on doing Thanksgiving at her house (like she has every year since I've been born) and she does EVERYTHING. And, this is for over 30 people just for the main meal, with other people coming later in the day (we usually eat at noon). She has had a rough life, but no matter what I can call her and she always makes me feel better. Even though I tell her how much I love her, and how much she means to me, I'm not sure words can express how grateful I am to have had such a wonderful role model for my life. I only hope that I can be half the woman she has been, and I hope that if I face some of the circumstances that she has, I will have the strength she has tried to instill in me to get through them as she has.
Happy Birthday Nana - I love you!
Posted by Tracee Thursday, December 4, 2008 at 10:05 AM
Labels: Chronic obstructive pulmonary disease, Conditions and Diseases, family, Happy Birthday, Health, Holidays, Kids and Teens, Medicare, Nana, Thanksgiving
A quick post
Sorry that this one has to be short but I have to get it in before all hell breaks loose here. We all went to the doctor yesterday and all of us have bronchitis except for Ella. She has pneumonia. So, it's going to be a long day. No school again for Grace for at least today, but maybe the rest of the week.
I also am going to be posting about a loss in the book community later on this week. Maybe today if I get some time. Dewey at The Hidden Side of the Leaf passed away last Tuesday. For those of you that don't know her or haven't checked out her blog you really should.
Hopefully I'll be able to write some more later.
Posted by Tracee Wednesday, December 3, 2008 at 5:28 AM
Labels: Bronchitis, Conditions and Diseases, Education, Ella, Ella Chen, Health, Pneumonia, Respiratory Disorders
Doctors appointment
Believe it or not, the whole family is going to go to the doctor today. My hubby has been coughing like crazy for over 2 weeks...he coughs so hard he actually throws up (sorry for the visual). I have Grace home from school again today - she actually started with this horrible cough last night, and with her heart condition we can't take any chance. I have sinus and ear pressure and am pretty sure I have a double ear infection - that usually gets me this time of year.
At least the clinic was able to get us all in at the same time. Tim went and bought a tree last night (don't even get me started...have you all seen the Charlie Brown tree)? We left the other tree at the house and were hoping to be able to afford the black tree that we want, but it just isn't happening this year. But now we are stuck with this tree. If you want to see some awesome trees you should check out Treetopia - I would love to have the cranberry or chocolate trees...after the black one. The purple one is really cool too! So, after the doctor it's off to Wal-mart for lights (yes, the tree he bought isn't pre-lit). It's ok, I guess because I am going to let the girls pick whatever kind of lights they want. Garland too - this is something we have never put on our trees but I am going to let them do whatever they want and have fun with it. I will make sure to post pictures of the tree when it is decorated - it could be very interesting.
Happy 2nd day of Nablopomo to everyone participating!
Posted by Tracee Tuesday, December 2, 2008 at 9:47 AM
Labels: Allegedly Unethical Firms, Black Friday, Business, Charlie Brown, Long Island, Shopping, Trees, Wal-Mart
Nablopomo - first day

Well, it's the first day of Nablopomo - I certainly hope that I can keep up with it. I was talking to some of the ladies from work as there was a tragic accident in my home town of Manitowoc this weekend. First of all, let me tell you that Manitowoc and Two Rivers (they are about 5 miles apart) are right on the shores of Lake Michigan. This is a picture of the lakeshore in summer...it is truly beautiful, and I really miss living on it. Here is some information that is pertinent to what I am going to tell you:
It is rare that Lake Michigan freezes over completely. Despite the area¹s reputation for harsh winters, the only year we are certain Lake Michigan approached being completely frozen over was 1979, when extended periods of low temperatures resulted in an extensive ice buildup in the southern half of the lake (see Figure 3). In an average year, ice covers a bit less than half of Lake Michigan¹s surface. Because the lake stretches about 300 miles from North to South, there is usually much open water over the deeper waters of the southern basin due to milder temperatures. Since airborne and satellite observations of lake ice began four decades ago, only two other years, 1977 and 1994, have seen periods when nearly 90% of the lake was ice-covered. Recently, warmer temperatures have kept the ice cover far below average levels. The icepack covered only 15% of Lake Michigan in 1998, even in late February when the icepack is usually at its greatest.
There are a few small rivers that are located in Manitowoc and Two Rivers, but all of them run into Lake Michigan. They are not something that I would ever feel comfortable walking, snowmobiling, or ice fishing on. You just never know, and every year something seems to happen. Here is the newspaper article for what happened a few days ago from The Appleton Post Crescent:
Two Manitowoc brothers, among three boys pulled from the icy East Twin River on Friday afternoon, died hours later at Children's Hospital in Milwaukee despite extensive resuscitative efforts, Manitowoc County Coroner Curtis Green said Saturday.
Larry Yang, 12, was pronounced dead at 10:57 p.m. Jimmy Yang, 13, was pronounced dead at 11:34 p.m. The causes of death were drowning and hypothermia, Green said in a news release.
Larry Yang was a sixth-grader at Jackson Elementary School in Manitowoc. Jimmy Yang was a seventh-grader at Wilson Junior High School. The Manitowoc School District will implement crisis counseling on Monday, Superintendent Mark Swanson said.
"We are devastated," Swanson said in a news release. "We are going to have some very sad schools next week."
Jackson Principal Steve Kleinfeldt described Larry Yang as being "funny and light-hearted," saying the boy loved soccer and was good at it.
Jimmy Yang kept a thoughtful eye on his siblings as a big brother, Kleinfeldt said.
Jimmy Yang was "always smiling, outgoing, with lots of friends and a great sense of humor," Wilson Principal Darlene Wotacheck said.
The brothers were in critical condition after being transported to Children's Hospital by air ambulance. One of the boys was submerged for 50 minutes while the other was submerged for 70 minutes. Rescue efforts were concentrated near the 27th Street Boat Launch, just south of Paddler's Park.
David Murack, a firefighter and paramedic with the Two Rivers Fire Department, located the first submerged boy. The water was deeper than Murack's height where he found the boy, he said Saturday. The firefighter's foot made contact with the boy. Rescuers then pulled the child out of the water.
A second submerged boy was located about 20 minutes later and about 70 minutes after a woman called 911 to report seeing boys in the river. Firefighter Kris Klein found the second boy.
"It is sad," Klein said Saturday. "It is too bad. They were in such a long time. We wish we could have found them sooner."
The cold water rescue team rescued another 13-year-old boy within 10 minutes of the 911 phone call. He was found clinging to a piece of ice with his head above water. Firefighter Pat Krajnik rescued the boy from the water.
The boy was in stable condition as of Friday afternoon, Two Rivers Police Department Lt. Scott Gerard said, and was transported to Children's hospital by ground ambulance where he was discharged Saturday, according WGBA, Channel 26 in Green Bay.
"If that child had been in the water much longer, he would have slipped under as well," Murack said.
The cold-water rescue team searches in a circular motion around the area the person was last seen, Murack said. The first hour during cold-water rescue is vital, he said.
Murack, who has helped with cold-water rescues for eight years, has had similar situations when people fall through the ice while ice skating or during car accidents. However, this time was different.
"I have never had to pull a child out of cold water," he said.
The 911 call was made by Laura Flickinger, 22, of Two Rivers. She saw the boys struggling in the river while she was outside putting up Christmas decorations. Her cell phone was in her pocket, so she called for emergency help right away.
Flickinger lives in the 2400 block of Jefferson Street. If she had not been outside at that moment, she said she probably wouldn't have seen the kids in the river.
The ice was less than ½-inch thick Friday afternoon, Gerard said. Two Rivers police are requesting people remain off the ice.
"We have received two reports of other children on the ice since Friday's tragedy," Gerard said in a news release.
As the rescue team was demobilizing from the 27th Street Boat Launch, a citizen reported that a person was crossing the West Twin River.
Children were reported riding their bikes across the West Twin River on Saturday. They made it safely off the ice, Gerard said.
A Two Rivers Police Department officer encountered three teenagers attempting to ride their snowmobiles on the East Twin River from the 27th Street Boat Launch, Gerard said. The teenagers did not cross the river after talking to the officer.
How terribly sad, and scary that even after this people will still not take the warning.